SUU, Alm.del - 2015-16 - Bilag 24: Henvendelse af 23/10-15 fra Borgerretsbevægelsen vedr. behandling af ME-patienter

Sundheds- og Ældreudvalget 2015-16
SUU Alm.del Bilag 24
Offentligt

Extra Edition – October 2015

1. Colofon / Personalia

Scientific reviews:

Richard Podell

Advisory board:

Leonard A. Jason

Cartoons:

Djanko

Editor/Editorial team:

David Egan, Eddy Keuninckx, Rob Wijbenga

Textual contributions for this issue:

Bente Stenfalk

Bill Clayton

Brenda Vreeswijk

Eddy Keuninckx

James David Chapman

Prof. Leonard A. Jason

Michael Evison

Rob Wijbenga

Distribution:

Eddy Keuninckx

Layout:

Eddy Keuninckx

Archive:

http://let-me.be

(here you can download all magazines for free)

Facebook:

https://www.facebook.com/groups/TheMEGlobalChronicle/

The editorial team doesn't accept any responsibility for any possible incorrect information that it

has been supplied with and which has been published in this monthly issue. Anyone can subscribe

to this free magazine by sending their email address to:

[email protected]

You can un-subscribe by sending a mail to:

[email protected]

Textual contributions for the October issue need to be supplied in Word by 10

December and sent

to:

[email protected]

The next issue will come out

on December 20

,2015.

Subscribe to this newsletter

We are no association or society, just a bunch of idealists who want to give our best efforts

towards recognition of this terrible disease. By trying to help connecting to each other all patients

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Picture front page:

Greg & Linda Crowhurst, Eddy Keuninckx

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2. Table Of Contents

COLOFON / PERSONALIA ___________________________________

TABLE OF CONTENTS ______________________________________

INTRODUCTION ___________________________________________

KARINA HANSEN __________________________________________

CARTOON DJANKO _____________________________________________ 7

KARINA HANSEN – 3

BIRTHDAY IN HOSTAGE OF THE DANISH PSYCHIATRIC

SYSTEM

. _________________________________________________ 8

PATIENTS BATTLE FOR JUSTICE _________________________________ 13

THE ‘RIGHTS’ AND WRONGS IN KARINA HANSEN’S CASE ______________ 16

CARDS2KARINA CAMPAIGN _____________________________________ 19

HELP KARINA – DONATE TO SAVE4CHILDREN _______________________ 21

VOTE FOR… _____________________________________________

MAJOR FUNDRAISING _____________________________________

POEM – ME ISN’T REAL YOU KNOW __________________________

CONNECTING YOU TO M.E. _________________________________

We as editors tried to make the magazine much more accessible by adding a link to each article

as included in the Table of Contents, which gives you direct access to the article itself. Any

suggestion is most welcome.

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SUU, Alm.del - 2015-16 - Bilag 24: Henvendelse af 23/10-15 fra Borgerretsbevægelsen vedr. behandling af ME-patienter

3. Introduction

Dear readers,

The editors of the ME Global Chronicle decided to publish a

special on the Danish severe ME-patient

Karina Hansen,

who is kept

against her wishes and the wishes of her parents in a clinic for people

with brain damage (which she doesn’t have), after having spent

more than two years in Hammel Neurocentre in Hammel, Denmark.

Being supervised by psychiatrist

Per Fink

and

Nils Balle

Christiansen

who decide about her life.

The contents of this extra edition consists mostly of articles, published in MEGC

13, but are highlighted here to commemorate the third birthday

Karina

will spend

in custody, on November 7, 2015, when she will become 27.

We believe that it’s most important the voice of the entire global ME-community

is being heard on this occasion, both for the sake of

Karina

and her family, and

of the community itself. It is high time to raise our joined voices, to proclaim we

don’t take our being discriminated and stigmatized and not being treated or even

mistreated anymore.

What you can do:

Write a birthday card to

Karina,

in a way it will get to her on or before 7th

November, either to her parents

Ketty

and

Per,

or to the clinic. Although

the psychiatrist most likely decided no postcard will be handed over to her:

Ketty

and

Per Hansen

Kløvermarken 8,

7500 Holstebro, Denmark

Karina Hansen

p/o Tagdækkervej 10

8450 Hammel, Denmark

Give a donation to the fund

Save4Children:

http://www.geef.nl/donatiemodule/taal:en/doel:save4children

In coordination with the Danish groups all donations will be spent on

Karina’s

case, until she is set free, like the German girl

Joanne

last July.

Support all activities to support the campaign to free Karina (more news

later). Check this page for more actions. People who sign up for the event

will be notified about further actions in early November when all the cards

have been sent:

https://www.facebook.com/events/499460126901603/

Let our joined voices be heard, all over, by everyone

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Next issue will be published about the 20th December, its deadline being the 10th

December 2015. Contributions, preferably in Word, can be mailed to:

[email protected].

However if you think something’s important enough to bring to all our attention,

it can be submitted earlier through:

http://ww.facebook.com/groups/TheMEGlobalChronicle/

the mentioned email-address:

[email protected]

The editors

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SUU, Alm.del - 2015-16 - Bilag 24: Henvendelse af 23/10-15 fra Borgerretsbevægelsen vedr. behandling af ME-patienter

4. Karina Hansen

Please join the event and support the fight to free

Karina:

https://www.facebook.com/events/499460126901603/

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Cartoon Djanko

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SUU, Alm.del - 2015-16 - Bilag 24: Henvendelse af 23/10-15 fra Borgerretsbevægelsen vedr. behandling af ME-patienter

Karina Hansen – 3

Birthday In

Hostage Of The Danish

Psychiatric System

Karina Hansen

is a 26-year-old Danish Severe

Myalgic Encephalomyelitis (ME) patient.

Unfortunately,

Karina's

story is no ordinary

disabled persons story

Karina,

with the help of her parents, was

struggling with an unknown disease from the age

of 16. She was eventually told she had ME,

although no official diagnosis was given. But the

treatment she was then given made her condition

worse, thus requiring her mother to become her

full time carer.

In Denmark, People with ME are deemed to be suffering with a 'Functional

Disorder' which is psychiatric condition. Their health service treatment is GET

(Graded Exercise Therapy) & CBT (Cognitive Behavioural Therapy) &

antidepressants.

Treating ME patients with these treatments, due to the PENE (Post Exertional

Neuro-immune Exhaustion) effect can often tip them into a severe ME state. This

happened to

Karina

in 2008 when she was admitted to an arthritis hospital.

In 2010

Karina

was again pressured into a hospital stay. By this time, she was

suffering all the classic ME symptoms, plus light & noise sensitivities. During that

hospital stay, a Dr. recorded that

Karina

was not depressed or had any psychotic

tendencies, so there was no reason why she should be kept for psychiatric

reasons, so should be allowed to go home. Two weeks later she was officially

diagnosed with ME.

In early 2012, I remember reading that a young girl (her name was

unknown at the time) was being pressured by a Danish psychiatrist,

Per Fink,

to be taken into his Hammel Neurocenter psychiatric clinic,

but refused to state what the treatment would be.

This reminded me of the case of the UK Severe ME patient

Sophia Mirza,

who in

2005 was forcibly removed from her home by Social Services and psychiatrists

and subjected to intensive GET/CBT treatment which sadly led to her premature

death. The coroner stated the cause of death was ME/CFS which was exacerbated

by the psychiatric treatment (they did not know about PENE in those days).

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Karina

and her parents hired a lawyer and

were granted the power of attorney over

Karina

and managed to fend of the

advances of

Per Fink.

Fink

then

wrote to the Danish Ministry of health

asking for the power to remove the

Karina's

parents’ legal rights over her.

On February 12th 2013,

Per Fink

was

(not actually there) but behind an

unannounced return, by five policemen,

two doctors, two social workers and a

locksmith,

Karina's

mother

was

physically restrained whilst the bedbound

Karina

was forcibly removed, pleading with them to allow her to remain at home

with her family.

The Danish state overrode

Karina's

parents’ legal rights to represent her, by

making some false claims against the family, that resulted in the state imposing

a legal guardian hand picked by the psychiatrists. These allegations were later

dismissed but the legal guardian has remained and has actually been extended,

despite numerous protest from ME patients from around the world.

Since that time,

Karina's

parents’ rights of power of attorney, have been

disregarded and

Per Fink

installed a legal guardian, a retired policeman named

Kaj Stendorf,

who has the replaced the rights of her family for her. He has also

refused all requests from

Karina's

family to visit her including Birthdays and

Christmas.

The psychiatrists have imposed a total ban on anyone who knows

Karina,

from

seeing her, throughout the two and half years of her captivity. This also includes

the Chairman of the Danish ME Assn and the UK

Dr. Nigel Speight

(ME Expert).

They claim

Karina

has a mental health condition, because they are politically

driven to prove that she does not have ME and that ME does not not exist in

Denmark.

They are funded by the worlds Health insurance industry and Big pharmaceutical

companies. The psychiatrist

Nils Balle Chriistensen,

has by his own admission,

said that he does not know what is wrong with

Karina,

but he claims it isn't ME.

Per Fink

has stripped

Karina

of her ME diagnosis and replaced it with an unknown

psychiatric diagnosis and barred

Dr. Speight

from carrying out any tests on

Karina

to get a second opinion.

Their repeated use of psychiatric treatment on

Karina,

such as GET etc, has by

their own admission resulted in brain damage to

Karina.

As well as being guarded

24/7 by the legal guardian, the staff in the 'care home' are barred from speaking

about

Karina

to anyone, including the rest of the patients in in the home.

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There is an unofficial media blackout in Denmark about

Karina

and she was even

hidden when the Danish Royalty visited the Hammell center last year. This is a

political situation that was set up by the previous Danish Social Democrat Govt

and is now being continued by the current Danish Liberal party Govt.

They have a constitutional monarchy and the main parties are virtually the same.

A very similar situation to the pre Corbyn UK situation. The Govt will not respond

to appeals by concerned individuals by concerned ME patients around the world.

The Danish State has funded the psychiatrists to redefine the ME disease as a

psychiatric disease in Denmark. At the same time Denmark has acknowledged

along with WHO's ICD-10 definition of ME as a neurological disease. So it does not

make sense.

We are fighting the Danish state and the

financial power of the Health insurance

industry

and

Big

pharmaceutical

companies.

Karina's

parents

have

employed a Lawyer for a long while and that

has led to them draining their personal

finances.

The reason the Health Insurance industry

are funding

Fink

is because ME is

recognised by the WHO (World Health

Organisation) ICD-10 as a neurological

disease. Therefore, ME patients can claim

on their health insurance.

These companies have a clause that that enables them not to pay out on

psychiatric illnesses. So they can save millions by avoiding the requirement to pay

out to the 17 million ME patients around the world. The pharmaceutical companies

are also looking to make billions out of the same patients by manufacturing

psychiatric drugs for the worlds ME patients.

Last summer ME patients and advocates had a fundraising campaigning to fund

further legal challenges against the psychiatrists. They now have a

Dr. Stig

Gerdes

who has been active in campaigning against the use of Gardasil in

Denmark. He intends to challenge

Per Finks

who theory on his BDS (Bodily

Distress Syndrome) Diagnosis, which is a psychosomatic functional disorder, that

he claims is the real truth about ME and numerous other misunderstood diseases.

Without a doubt, they have all now gone too far to save face in their attempts to

disprove ME and are unable to turn back now. The same power that many of the

worlds psychiatrists have, is based around the DSM V (Diagnostic & Statistical

manual).

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They intend to create a huge multimillion dollar psychiatric industry around the

manual. We in the UK have the

Wessely

lobby who claim to be CFS/ME experts

and are employed as consultants on ME by the DWP and the NHS. The UK

psychiatrist

Peter White,

who is one of the

Wessely

lobby, is actually involved

Karina's

case and BDS has been trailed in the UK.

On November 7th 2015,

Karina

will spend her third birthday as a hostage to

Fink

and has no hope of release in sight,

Karina

desperately needs our help.

Please don’t forget

Karina.

The psychiatrist has never allowed her family & friends to visit her, regardless

whether it is her birthday, Christmas or whatever.

Is this the way a very ill human being should be treated in a modern European

country and where does the Human Rights Act stand on cases like this?

Shame on Denmark for allowing this to happen in 2015 and the Danish media who

have imposed a news blackout on

Karina's

case.

What is Amnesty Internationals view on this abuse of human rights in Denmark?

What is the policy of the European court of Human Rights on this matter?

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In November, for the second year running, we will be organising a mass birthday

card campaign for

Karina.

The psychiatrists have ruled out accepting any cards

for

Karina,

so all cards will once again be sent to her parents’ home in Denmark.

On behalf of

Karina,

we appeal to Amnesty International to try to help

Karina.

Send someone to talk to her parents and the Danish ME patients who hold vigils

out side the home that

Karina

is bring held against her will. Please give

Karina

hope on the eve of her third birthday as a hostage.

https://secure.avaaz.org/en/petition/Justice_for_Karina/share/

Michael Evison

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Patients Battle For Justice

Is it possible that a disease as impairing as Type II diabetes

mellitus, congestive heart failure, multiple sclerosis, and end-stage

renal disease could be repeatedly belittled and delegitimized by

scientists and health care professionals? Tragically, this is the case

for a devastating illness affecting over one million Americans, and these patients

have been deprived of their basic rights to respect, appropriate diagnosis, and

humane treatment.

In the beginning, patients with this illness had a credible name, myalgic

encephalomyelitis (ME), and diagnostic criteria that had been developed by the

distinguished British physician,

Dr. Melvin Ramsay.

Yet, in 1988, the Centers for

Disease Control (CDC) renamed this illness chronic fatigue syndrome (CFS).

Patients were unanimous in their disdain for this trivializing term, but they were

no match for the supreme power and authority of the CDC. The new name placed

patients around the world in a compromised position, as they were now forced to

use a degrading and stigmatizing term in explaining their illness to family

members, friends, work associates and medical personnel.

Patients were next characterized as having a relatively rare “Yuppie Flu” disease,

and flawed epidemiology was responsible for these inaccurate and biased

characterizations. If this were not enough, the CDC in 1994 developed a case

definition that did not require the cardinal symptoms of this illness (such as post-

exertional malaise and neurocognitive impairments).

When this porous case definition was used to select patients, the resultant

heterogeneity increased the risk of failing to consistently identify biomarkers,

which contributed once again to dismissing those affected as having a psychiatric

illness. Misguided psychiatrists then developed treatment approaches focusing on

increasing exercise, even though the patients’ chief complaints were muscle

weakness and exercise-induced fatigue.

Rarely in the annals of recorded

medicine has there been such a

David and Goliath-like battle,

with

impaired and sick patients trying to

defeat an entrenched medical and

scientific establishment. Their story

of resistance is not one of an epic

skirmish, but rather a veritable war

with health care professionals and

scientists that has endured for

decades, as has been so well

documented by

Hillary Johnson.

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This past year, in an effort to rectify these tragic abuses, the Institute of Medicine

(IOM) released a report that not only clearly emphasized the debilitating nature

of this illness, but also strikingly rejected the stigmatizing name CFS and the

defective case definition.

Unfortunately, particularly in light of

decades of past disastrous scientific

blunders, the IOM once again

imposed an inappropriate name (i.e.,

systemic

exertion

intolerance

disease) on the patient community,

but patients valiantly challenged this

recommendation by collecting data

that exposed the spuriousness of

this foolish name change effort.

Even a federal panel called the Chronic Fatigue Syndrome Advisory Committee at

its recent meeting in August has rejected this new name.

The IOM also released a new case definition to replace CFS, and our published

work now suggests that these new criteria would almost triple the prior CFS

prevalence rate, and this is in part due to the inclusion of individuals who formerly

had been excluded.

Unwittingly, this inadvertent action accomplished much of what

Bill Reeves

and

the CDC had attempted to do a decade ago when they proposed an ill-fated

expansion of the case definition.

Is there any way to salvage the damage inflicted on the larger patient community

by well-intentioned scientists from the IOM? Perhaps we might consider re-

activating the brilliant scholarship of

Dr. Melvin Ramsay

and the term Myalgic

Encephalomyelitis, which would identify a smaller more homogenous group of

patients as having ME.

In contrast, those meeting the broader IOM criteria, which we might call

neuroendocrine dysfunction syndrome (which had been recommended by the

patient inspired Name Change workgroup over a decade ago) could replace CFS

and this category would represent a larger group captured by the key IOM

symptoms.

Those that do not meet the ME criteria or the broader IOM criteria could be

classified as having chronic fatigue, which is the most general category, and

represents those with 6 or more months of fatigue. Such a tripartite classification

system would eliminate the detested term CFS, validate the original respected

name ME, differentiate ME from the IOM criteria, and provide a new

nonstigmatizing term for those not meeting the more restrictive ME criteria.

In addition, the broader IOM criteria could be used for clinical purposes, whereas

the more restrictive ME criteria could be used for research purposes.

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Some scientists might prefer to consider this tripartite grouping a matter of

severity rather than categorical differences, but all agree that differentiations of

this type occur with many diseases, and such a classification system has the

potential to clarify discrepant findings from epidemiologic, etiologic, and treatment

studies.

Ultimately, whatever decisions are made on the names and criteria, the vetting

process needs criteria to be open, inclusive and transparent, with patients playing

a prominent, decisive, and leadership role in these deliberations.

Prof Leonard Jason,

September 28, 2015

Leonard A. Jason

is a professor of clinical and community psychology at

DePaul

University,

director of the

Center for Community Research,

and the author of

Principles of Social Change

(http://bit.ly/1KJ89Qz)

and co-editor of the soon to be published

Handbook of Methodological

Approaches to Community-Based Research: Qualitative, Quantitative,

and Mixed Methods

(http://bit.ly/1KPxl4M).

Read his previous blog posts on the OUPblog.

See more at:

http://bit.ly/1FBepLl

DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer

to participate in a voluntary research study to determine which symptoms may be

commonly experienced by individuals in multiple fatiguing illness groups, and

which symptoms may be unique to each illness. Participation includes completion

of a confidential online questionnaire, which takes approximately 45 minutes to

complete.

Eligibility Criteria:

Adults at least 18 years of age

• Must be able to read or speak English

• Have a diagnosis of Multiple Sclerosis, Lupus Erythematosus, Cancer, Myalgic

Encephalomyelitis, or Chronic Fatigue Syndrome.

If you are interested in participating, follow this link to access the survey:

https://redcap.is.depaul.edu/surveys/?s=d9gSMwkGsW

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SUU, Alm.del - 2015-16 - Bilag 24: Henvendelse af 23/10-15 fra Borgerretsbevægelsen vedr. behandling af ME-patienter

The ‘Rights’ And Wrongs

In Karina Hansen’s Case

Abuse of power, conflict of interest, cronyism, lies, incompetence,

secrecy and deep unprofessionalism infuse the case of

Karina Hansen.

Karina Hansen

was neither insane nor a danger to herself or others. She suffered

from the physical illness ME (chronic fatigue syndrome). Yet she was hospitalized

against her will in February 2013. She was legally incapacitated when she was

hospitalized, and despite the fact that she called her parents and the police to try

to get help, she was not heard.

After the forced hospitalization, she was appointed a guardian on May 29, 2013.

The guardian,

Kaj Stendorf,

is a recently retired policeman. Before May 29,

Karina’s

parents were her guardians, but their requests for access to her medical

records have been rejected.

The police officer who gave the order to remove

Karina

from her home in February

2013 was none other than

Kaj Stendorf,

who was at that time working as chief

of police in

Karina’s

home county, Holstebro. He should therefore be disqualified,

due to conflict of interests, but the court refuses to consider this issue.

Hospitalization-papers and the legal basis for the hospitalization are still missing.

Karina

is still not allowed to receive visits, 2 years and 7 months after her

hospitalization. This is ordered by the psychiatrist

Nils Balle Christensen

from

the Research Clinic for Functional Disorders.

She has been treated with cognitive therapy, physical training and psychotropic

drugs, which are very hazardous for ME-patients. Medicine works more intensely

in ME-patients than in healthy people. That’s why she may have been seriously

damaged by the treatment.

The psychiatrists did not respect her ME-diagnosis, even though she was

diagnosed by internationally recognized specialists. The psychiatrists gave her

another diagnosis, PAWS, (Pervasive Arousal Withdrawal Syndrome) which is

rarely used and usually only for children traumatized by war.

Karina’s

parents hoped to annul the guardianship of

Kaj Stedorf,

but the City

Court upheld the guardianship without allowing the family’s lawyer to speak or

present his case.

The High Court also upheld the guardianship, but the judgment is inconsistent and

untrustworthy. There are obvious contradictions in the judgment and the

guardian,

Kaj Stendorf,

was not called as a witness, despite the fact that the

lawyer of the family,

Keld Parsberg,

had specifically requested the court to do

so.

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Now

Karina

has been transferred to Tagdækkervej 10, in Hammel, a home for

brain-damaged people. She was not brain-damaged when she

was hospitalized.

The two lawyers on the case have not yet been told the exact

legal basis on which

Karina Hansen

was hospitalized. The

Municipality of Holstebro, the Board of Health and a Mental

Health Fund all give different explanations.

Karina’s

state-appointed lawyer,

Anne Grete Kampmann,

has earlier been paid by the Municipality of Holstebro to give them legal

assistance. This presents a clear conflict of interest and means she should be

declared incompetent in

Karina’s

case.

Neither the guardian,

Kaj Stendorf,

nor the appointed lawyer,

Anne Grete

Kampmann,

have been helpful in getting

Karina

a second opinion from a

specialist in ME, which is a normal patient’s right. They appear to be the 'system’s

men' and not guardians who want the best for her.

On 30th August last, there was a trial to decide if

Kaj Stendorf

should be

Karina’s

permanent guardian. This would mean that the guardianship would not have to

be renewed on a yearly basis. During the trial, the judge and the lawyer,

Anne

Grete Kampmann,

exchanged meaningful glances several times. And during the

lawyer

Keld Parsberg’s

presentation,

Anne Grete Kampmann

rolled with her

eyes and shook her head which is completely unacceptable behavior during a trial.

This behavior could give one the impression that the matter was decided in

advance.

The guardian,

Kaj Stendorf,

asked the judge for permission to leave before the

trial was over, which he was allowed to do and thereby avoided answering any of

Parsberg’s

planned questions.

Kaj Stendorf

did not know whether

Karina

gets

psychotropic drugs or not. He knew nothing about the treatment she underwent.

He seemed nervous and he stuttered.

From the Municipality no one came and thus the Municipality avoided answering

questions in the court.

The psychiatrist

Nils Balle Christensen

appeared strangely incoherent and

inconsistent in his statements. For example, he claims to have had long

conversations with

Karina

while at the same time he says that she has no

language. At a meeting about the PAWS diagnosis (which does not have a WHO

ICD-10 code)

Christensen

said that he has no experience with that diagnoses or

how to treat it, and that it was 'another' psychiatrist who had given the diagnosis.

Who this was could not be disclosed.

Christensen's

second-to-last written statement he says that

Karina

does not

speak, but nevertheless according to him

Karina

stated that she voluntarily lives

at this home for brain-damaged people and that she voluntarily receives

treatment. In the last statement from

Christensen

it is said that

had a patient

advisor, but we cannot get this verified.

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In this last statement

Karina

is described as incompetent and unable to take care

of herself. Furthermore, it states that she will not talk to NBC, but after that it is

said that she shows a number of improvements in her condition. But these

“improvements” do not fit with what she was able to do when she was first

hospitalized where she managed to phone home several times and even call the

police.

Christensen

also apparently invented a malnutrition-diagnosis that must have

occurred in his care, because before her hospitalization

Karina

was given a diet

which was recommended by leading ME-experts. Furthermore, they don’t want to

tell which treatment she currently receives, if any, or how she responds to it.

As the reader can understand, the man who is responsible for

Karina Hansen’s

hospitalization and detainment appears either indifferent or totally arrogant

towards her needs, or he is deeply unserious or maybe sick.

The court ought to reconsider

Chistensen’s

incoherent argumentation and in the

opinion of the Civil Rights Movement, the court ought to understand that it is

necessary to reevaluate the case with new eyes now, 2 years and 7 months after

the case has begun.

Bente Stenfalk,

Vice President of the Civil Rights Movement.

Civil Rights Movement’s Newsletter from August 2015

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SUU, Alm.del - 2015-16 - Bilag 24: Henvendelse af 23/10-15 fra Borgerretsbevægelsen vedr. behandling af ME-patienter

Cards2Karina Campaign

Sadly, this is the the second Cards2Karina campaign we have been forced to run,

in the ME worlds efforts to free

Karina

from the grip of the Danish state and their

agent

Per Fink.

Please support this event. Please fight for an end to the worldwide

psychiatric 'solution' to ME. Help us in our struggle to bring

Karina

home.

November 7th 2015 is

Karina's

birthday. Unbelievably, its her third birthday as a

hostage of the Danish state, simply because they contest her ME diagnosis, due

to their false belief that ME is a psychiatric disorder, that is being pursued on a

financial basis, because it is cheaper to fund psychiatric care for ALL Danish ME

patients, than fund creditable bio-medical treatment and care and then excludes

ME patients from many aspects of health insurance or benefits.

This scandal has now lasted 33 months,

which is 924 days, but to poor

Karina

will seem more like the 22,176 hours!

Once again, we are hoping to send cards

to both

Karina

at her 'care' home and

to her parents’ home.

The 'care' home management promised

our ME friends in Denmark, that any

post sent to

Karina

would be given to

her. So to test this statement, a plain

brown registered letter was sent to

Karina

at the home. Sadly, it was returned, unopened. Further investigations via

the Danish postal service led to the statement from the post man who actually

delivered the letter saying that he handed the letter to

Karina,

but she handed it

back unopened.

We have to assume that last years’ statement from the Hammell Clinic, that

Karina

had been moved to a nearby 'care' home, because she now was suffering

from brain damage, is sadly very true. Most people who understand ME, know

that there is an inflammation issue in the brain, with severe ME and the constant

use of GET only exasperates this problem. The clinics are known to favour

CBT/GET and 'Mindfullness' training, in an attempt to brain wash ME patients into

'exercising' themselves back to health frown-emoticon

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In order to capture

Karina's

imagination, in her present state, we are suggesting

that those sending cards to

Karina,

should use 'cute' stickers all over the envelope

and make it plain that it is a birthday card for

Karina

with 'happy birthday',

'birthday presents' & 'birthday cakes' stuck on the envelope. Also fancy lettering

with her name may help. These stickers can be bought at a Poundshop for 2 packs

for a pound called Fun stickers. Also some are available from Ebay.

Posting a standard card to Denmark 18 cm X 13 cm, weighing 5 grams from the

UK will cost you £1 or two 2nd class stamps. The delivery time is 3-5 working

days. Those posting from other parts of the world, please either check out your

local postal service for international costs and delivery times (this can be done on

line) If you do get the information, please share on this page.

The care home address is:

Karina Hansen

p/o Tagdækkervej 10,

8450 Hammel,

Denmark.

Karina's

parents home address is:

Ketty

and

Per Hansen

Kløvermarken 8,

7500 Holstebro,

Denmark

Please ask any further questions you may have, about the aims of this

Cards2Karina event on this event page.

This year we intend to have a second wave of actions in our continuing campaign

to free

Karina.

The details of the 2nd wave will be released after the final date of

UK/Europe posting, on the 31st October.

Michael Evison

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Help Karina – Donate To

Save4Children

The charity

Save4Children

has been created by the editors of the ME Global

Chronicle (http://www.let-me.be) and helps parents whose children have been

forced into psychiatric wards by authorities, to try and set them free by legal

procedures, if the parents have proven to be incapable of affording needed legal

assistance.

They helped in

Joanne’s

case – the German teenager who has been held under

psychiatric care for 18 months, and

Joanne

has been allowed to go home last

July. Now they would like to help

Karina Hansen.

Karina

severely-ill

patient who has

been held in a

hospital against

her will for 2 �½

years.

Her

parents are still

not allowed to see

her. Her condition is worse now than when she was forcibly removed in 2013.

She can no longer speak in full sentences. She sits in a wheelchair and mumbles

to herself. She is allowed to wear her earplugs as she becomes very distressed

when they have tried to take them from her.

When she was first taken, she actively resisted treatment and was therefore given

the diagnosis of Pervasive Refusal Syndrome.

This is the same diagnosis as

Joanne

was given. Now

Karina

no longer resists

treatment and the psychiatrists claim that this is improvement.

Karina

has never

resisted eating, which is a core symptom of PRS, so of course this diagnosis is

completely ridiculous.

Also,

Karina

is a young adult and PRS is exclusively a pediatric diagnosis.

Although it does not look good for

Karina

at the moment, the fact that “Joanne”

has been released gives us hope.

If you would like to help, please donate to

Save4Children

at:

http://www.geef.nl/donatiemodule/taal:en/doel:save4children

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The money that will be donated will be transferred in mutual deliberation to a

volunteer non-profit civil rights group called The Citizens Right’s Group

(Borgeretsbevægelse) that has taken up

Karina’s

case.

CRG fights for cases that are examples of principle human rights violations and

they are finding many violations in

Karina’s

case.

Donations

will

collected

the

S4C

site

here:

http://www.geef.nl/donatiemodule/taal:en/doel:save4children

Information about the

Karina

and the case can be found in this and future issues

of the ME Global Chronicle and at these sites:

Justice for

Karina Hansen

- find info under notes.

https://www.facebook.com/JusticeForKarinaHansen

Two videos about

Karina

from 2013:

http://www.youtube.com/watch?v=Dk3e8IWj7M0

http://www.youtube.com/watch?v=JTkkcvlvYf8

The Citizen’s Rights Group – documents in the case in Danish

http://xn--borgerretsbevgelsen-xxb.dk/

New documents will be added as they become available.

Check also:

http://meadvocacy.org

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5. Vote For…

Justice for

Karina

Karina Hansen

suffers with severe Myalgic

Encephalomyelitis

meaning

muscle

pain

with

inflammation of the brain and spinal cord.

ME is a neurological disease as noted with the World Health Organization (WHO)

G93.3. Every country who belongs to the United Nations must abide by the WHO

description of what is a physical disease as well as the United Nations Human

Rights.

Demark is holding Karina

against her will and forcing her to take part in

treatment

which can kill her.

Denmark believes that ME is the same as Insanity

which is not how ME is described in WHO G93.3. Denmark is a member of the

European Union, United Nations, Human Rights and WHO.

https://secure.avaaz.org/en/petition/Justice_for_Karina/share/

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6. Major Fundraising

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The fund called Save4Children has been initiated in March 2014 by the editors of

the

ME Global Chronicle.

We would very much appreciate your financial help

with this project to give financial support to parents whose children are forcibly

taken from home and ‘treated’ in psychiatric wards, like

Sophia Mirza

once was,

and the German 14 year old

Joanne.

She´s been released thanks to legal procedures, partially financed by the

Save4Children Fund.

The Fund will now direct its arrows to try and set free Danish

Karina Hansen,

about whom you can read in the section ME & Children of this issue of the ME

Global Chronicle.

Until now the fund has collected more then

€ 6.386,-

http://www.geef.nl/doel/save4children

You can donate any amount through:

http://www.geef.nl/donatiemodule/taal:en/doel:save4children

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7. Poem – ME Isn’t

Real You Know

ME ISN’T REAL YOU KNOW……

ME isn’t real you know

ME is all just fake

I chose to give up work you know

To rely upon the state

ME isn’t real you know

It’s all just in my mind

I just fancied giving up

On everything in my life

ME isn’t real you know

ME is all just talk

I just chose to give up running

And use a stick to help me walk

ME isn’t real you know

The pain is in my head

In fact, it’s also in my arms

My back, my ribs, my legs

ME isn’t real you say

It’s all just my pretend

You think I choose, my life to lose

As well as my final friend?

ME isn’t real you say

Laziness is in my genes

You say this though not knowing

That I’ve worked since in my teens

ME is just fake you say

I really am ok

Do you really reckon, for just one second

I’d choose to be this way?

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Lazy sod, it’s in your head

Wish I could just stay in bed

Shake it off, stop complaining

To be like that, you must be feigning

Just not possible, to have pain like that

And legs that just won’t go

To feel battered and bruised like you say you are

You’re a lying so and so……

To be this way is not by choice,

To hide from light, to hide from noise,

Friends don’t call, and that’s not all

They talk behind our back

They say we’re no fun, won’t go for a run

But then they don’t know Jack.

Hit with this, we don’t know why

Keep fighting on, is our battle cry

All we ask is for belief,

It’s taken our lives like a skulking thief

I ask for not a single pound

But when next the thought is going round

Let’s all do a charity run

What’s our cause, is there one?

Can I ask that you keep minds free

And choose to help those with ME.

Bill Clayton

https://www.facebook.com/bill.clayton.94?fref=nf

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8. Connecting You To M.E.

Leonard A. Jason,

Ph.D. DePaul University - Chicago, USA

“The future of the field is in connecting the many patient and

scientific groups into one larger body that is united for change.

Any events that bring people together across countries and

organizations should be promoted.

The message is simple, we have more impact with numbers, and when we

flex our collective muscles, then we become a movement like the civil

rights, women’s and disability revolutions of the 60s, 70s and 80s.

The HIV/AIDS groups changed policy throughout the world, but they did it by

keeping their focus on critical issues and demanding change, and although the

voices in that movement were also divided, for a few things like increased funding

and provision of services, they were all together.”

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